It seems all is coming to a head, to a culmination this weekend. Julia caught a 24 hour flu and immediately started showing signs of jaundice, bilirubim in her eyes and skin. She's needing a transfusion (it's been 5 weeks since her last).She has a blood test tomorrow at Central Dupage Hospital with a transfusion scheduled for Monday.
Last night she complained of itching and I saw those all too familiar bumps that come from her disease. When her bilirubim (red blood cell waste) comes to the surface of the skin, she also gets the itchies really bad. Her coloring is better today but yesterday her eyes and skin were golden.
This weekend is also very important in our IVF process. Depending on when I take the trigger shot, the egg retrieval could be on Sunday or Monday. Should be interesting to see just how everything will turn out with Julia and me needing to be at different hospitals around the same time.
It's sobering days like today that I remember why we have gone down this road of IVF/PGD. The effects of this disease are pretty painful; gall bladder stones, liver mal-function, enlarged heart, advanced osteoperosis, etc. I so want to spare Julia from all of this and her needing her 67 transfusion right now just confirms to met that we are doing the right thing for her. I know there are many parents who cannot physically help their precious children find an earthly cure. What a priviledge it is to try, to do this for Julia and for our family.
It is overwhelming, but my hope is in the One who heals!
Thank you for your prayers for all four of us.
We are thankful for the specific updates and details. It is a joy and blessing to 'hear' your thoughts and the things on your heart. We rejoice with you worshipping and praising our Creator who heals, saves and blesses with continuous grace. With love and prayer, Laura and Tom
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